These are my nephews...Cole is 5 - he's the blondie~ Conner is 3 and full of mischief! Baby Carter is 13 weeks. Cole is Chloe's buddy! He is 4 months older than her and everyone has always thought they were twins!
Cole and Conner both got their genetic screening back last week. It was NOT the news we wanted.
Their genetic markers with Cystic Fibrosis are G576A and R668C. Please pray that their markers are on the same chromosome (making them only carriers). If they are on different ones then they will have the disease.
I know that going through this with just one of my children was SOOOO hard. My heart is breaking for my sister having to go through of this with both her oldest ones. They are waiting to test baby Carter until he is older. Thanks in advance for all the prayers.
Saturday, August 30, 2008
Thursday, August 28, 2008
Wednesday, August 27, 2008
This summer I discovered the passion series DVDs by Louie Gigglio. His DVD Hope When Life Hurts Most" was my liferaft for awhile. This is a small clip of one sermon in the series called How Great is Our GOD. His descriptions of this awesomely HUGE universe we have and the fact it magnifies the maker being an awesomely Huge God was cool. The first clip describes something called Laminin. Very cool.
This clip is my favorite...it speaks to anyone who finds themselves in a place of despair. God is in control!
His sermons are dead on for me. These 2 clips aren't even from my favorite message! I will have to search for his youtube on Hope. It was life changing for me.
Okay friends and family...I'm trying to give everyone a "quick" update on how our summer has been!!! We spent a chunk of time (and $$$) playing baseball! Jesse's Westside team went very far this year! He actually got to be on ESPN!!! Sadly, they got beaten by a very good Florida team one game short of making it to the World Series! It was their first loss ever as a team. ANYWAY, below is a photo of Jesse in his (stinky)dorm room at regionals in St Petersburg!
Here is a photo of Chloe with our Westside (Alabama) team in the background. Notice anything "different" about her? Yep, the pink monster! She broke her arm the first day of Jesse's state tournament while we were in Sheffield, Alabama. She had surgery a day or two later. To make things a little crazier...the day after the broken arm visit to the ER, Wesley, my 16 year old, injured his ankle! We went BACK to the ER for xrays. He ended up in an aircast and on crutches!!! (Wish we took a pic of them together!)
We've GOT to give a shout out here to the Tennessee team for "bearng it all" to support Alabama at regionals! This team had some super boys that were really pulling for us to beat Florida! We actually had several different state teams there supporting us. Says something about the character of the kids on Jesse's team.
And here is a pic of me and Wesley, my oldest...he actually just turned 16 - SCARY!!!! He got a super cool new cell phone and will get his dad's car after he finishes his driver's ed course and gets his liscense!!! Happy bday Wes!
And finally....an update on our health...God is a good God. I had to come to this realization no matter what the outcome in our family. I've shared with most everyone about the scripture I have clung onto all summer - John 16:33. "I have told you these things so that you will know in ME you will find peace. For in this world, there will be trouble, but take heart, I have overcome the world!"
Jesse is a christian. He told me this summer he was not afraid to die. Kinda hard for a mom to have to listen to her son need to say this. He told me he was sure he was going to heaven, he just may get there sooner than us! But, I have also told everyone that would listen that CF is not in control of his life, and neither are the doctors. God is in control of my baby. He will not leave this earth one second before God's will for his life is done. THIS IS WHERE WE WERE BEFORE OUR LAST DOCTOR'S VISIT!!!
This past week, we had a LOT of news. Jesse's genetic screening came in. He has NOT ONE genetic marker out of the 1500 they are able to screen with any Cystic Fibrosis!!! Our doc wanted us to do another sweat test. His last, as many of you know, he failed with a 61. He was in the diagnosis range for CF...THIS test came back only 40 - one point above normal!!! CRAZY! - Our doctor said that with all the testing and observations, he was backtracking on what he said earlier this summer!!! He said he now has determined that Jesse does not have CF!!! He thinks Jesse has something odd with his sweat chloride levels that does not include cystic fibrosis. God is a Good God - with the good or the bad. His own son was put to death for me and my children. I will thank him for the good and bad because all that He does is used for eternal good - whether I understand it or not. PLEASE continue to pray for my sister Karen. Her oldest 2 boys, Cole (5)and Conner (3), both have genetic markers that have shown up with genes for CF. We will know more about what this means for them in the next few weeks. Thanks to all for the prayers!
Click HERE to visit my auction!
I've Been TAGGED
I've been tagged by Jen of BareFoot Divas Designs
Here are the rules:
1. Link your tagger and list these rules on your blog.
2. Share 7 facts about yourself on your blog, some random, some weird.
3. Tag 7 people at the end of your post by leaving their names as well as links to their blogs.
4. Let them know they are tagged by leaving a comment on their blog.
Ok here I go...
1.) I was born on a small farm in Alabama. We use to tell everyone that you had to pack a lunch to go ANYWHERE because we lived so far out in the sticks!
2.) I made the all county and all area team in basketball all 4 years of my high school "sports career"
3.) I was 3 months pregnant with my first child and had NO CLUE! (I was on the pill and still had my monthly visitor!) I was sick and thought I had cancer or something...NOPE, it was Wesley! - My oldest son.
4.) I am a night owl and usual work til 1:30 or 2:30 every night.
5.) Before ebay and designing I taught special education for 8 years - and before that I worked at a Mental Health Center
6.) My most favorite things to do are to Cheer Wholeheartedly for my kids in their various sports events and do the simple things like watch them play at a park or chase a butterfly
7.) While visiting high school classmates back home this past month I was told I had changed the LEAST as far as looks go ... should I be offended? I mean, I ditched the 80's do LONG ago!!! LOL!!!
I am going to tag...
Amelia Sweet Feet Boutique